I had a nice surprise today when my ‘Bridezilla’ friend dropped by to see how I was on her way back down to London. It was nice to see her and talk about her wedding next month as it gave me chance to focus on the things I’m excited about rather than worrying I won’t be able to enjoy it. I was hoping to get two Orencia infusions in before the actual day but that is looking less likely as time goes on, perhaps even one will bring me some improvement though… I’ve got to stay positive.
The other good thing about seeing this particular friend is that she is involved in medical research, although her current field is Osteoarthritis rather than Rheumatoid (I’ll sway her eventually I’m sure). Still, she is able to get me information that I can’t access myself and has promised to look into any studies with Orencia and Still’s Disease. All the information I have at the moment relates to its effectiveness in treating Rheumatoid Arthritis, which seemed pretty promising with 73% of people showing signs of benefiting from the drug. Of course, as my rheumy pointed out (dashing my enthusiasm slightly), us Still’s patients are a slightly different kettle of fish so these figures do not directly apply to us.
I felt a bit silly for getting carrying away and forgetting this important factor but he reassured me that he was still very optimistic about Orencia for me, as its mechanism is similar to the Cyclosporin that was a successful part of my treatment for almost nine years and also the Ig therapy I had in my teens, although I’m not sure just how effective that was. He also said that usually you can see some improvement after the second infusion or within the first month, so there’s still hope that I could feel better for the wedding yet. Here’s hoping.