It’s a little later than I was hoping for: Thursday 30th June, which is just two days before the wedding(s) and the day before we leave for the venue. In fact, my friend will be arriving from Cornwall to stay with us at some point that day (hopefully late afternoon!), so it is going to be mega hectic. My appointment is quite early in the morning but I’m not sure how long I will be there for and how I am going to feel after the infusion – starting a new drug is always risky – but at the same time I don’t want to put it off when I have been looking forward to it for so long.
I guess my main disappointment is that there is virtually no chance of feeling any benefit from the Orencia before the wedding now, so I will have to hope that the cortisone shots will hold everything back until then. I have been feeling much better this week so I just need it to last while I get through those fun-packed few days; even if I end up crashing afterwards.
I hate the fact that I have to focus so much on how I might feel or what might happen, rather than just being able to look forward to it. It is my good friend’s wedding; the first of my friends to get married and it is so exciting that I want my heart to be in it one hundred percent.
But we can only do as much as we can.