One of the hardest things to get to grips with when living with Still’s Disease, and many other chronic illnesses, is how things can change so dramatically from day to day. We are told to expect good days and bad days and this is certainly the case. You make the most of the best days and learn to foresee the bad, usually with a steady decline in wellbeing or one that is due to over-exerting yourself. But what about the days when the symptoms hit you like a truck out of the blue? Do you ever find yourself wondering what you did to cause such a storm?
When I was younger, my sudden onset of symptoms would worry my parents no end but by the time I saw the doctor the next day, I would be racing round the waiting room seemingly fine. One of the theories the doctors had was food intolerance and I eventually ended up with a list of foods, pages long, that I was to avoid.
This is how my days seem to be going at the moment: On Monday morning I practically bounced out of bed, commenting on how great I felt and looking forward to making the most of a lovely day. I sat in the garden, spent maybe half an hour grocery shopping at the local supermarket and then cooked our evening meal. Yesterday (Tuesday) I woke up and felt like I had been hit by a truck, by mid-afternoon I had retired to bed for a power nap and by evening I literally could not move; I needed help even sitting up in bed to take my tablets and was getting scared as to how I would feel in the morning. Then I wake up this morning and am relatively okay again, the pains are there but they are bearable and I’m up and about at least.
I wish I could see what was going on inside me throughout all this, or at least ask my body what it thinks it’s playing at! I have stopped Enbrel now I guess, but I have missed doses before while on antibiotics so I wouldn’t have thought I’d feel the effects so quickly. So my other concern is that certain foods could actually play a part in inflammation levels; I had two lots of soy sauce, each one coinciding with an increase in pain… could it really be that simple?
Maybe keeping a food journal would be worthwhile for us after all.
Edit: Related Article can be found here