Well, after all that worrying about how I was going to physically manage my friend’s three day wedding event, things turned out pretty well and I had a fantastic time! I practically bounced out of bed each morning and felt much like my old self; in fact, I didn’t struggle at all. I had expected that, after such a long day with so much standing etc, I would have to excuse myself from the evening reception quite early… but no, I was still there at midnight and even managed a dance or two. Unbelievable!
I don’t want to be too hasty in claiming that the Orencia infusion has worked a miracle; friends have suggested I may be running on adrenaline or even some sort of placebo effect and they may be right. BUT… I am feeling stronger in myself, as if some sort of energy / essence that had been lost, has returned. The joints are still stiff, some are swollen but there is less pain and I’ve always said that the fatigue is the hardest thing to deal with, so to me there is a noticeable difference and I do believe that I felt it straight away.
First there was the warm, tipsy, glow I felt after the infusion and the sensation that I could clench my hands again and feel some strength in them, while we were driving home. Then, when I was trying to drift off to sleep, I felt what I can only describe as lots of little fireworks in my bloodstream – as if I could feel the stuff circulating in my veins. Perhaps I have an over active imagination but that’s exactly what I felt.
When my alarm went off at 8.00am the next day, I felt ready to take on the world; there was no slow rolling over and unfolding myself painfully out of bed, testing out my wobbly legs and struggling to heave myself up. I didn’t need to wait for my painkillers to kick in before taking a shower, dressing and managing the stairs. Instead, I did those things the way most people take for granted – without even thinking – and even decided that I would NOT increase my dose of Prednisolone to 40mg after all, I felt so good that I was sure I wouldn’t need it.
And I didn’t need it. And even now, when it’s all over and everything should have hit me / caught up with me, I am still feeling pretty good! I don’t really know what to think… is it too early to call this a miracle drug? Obviously, I don’t want to get my hopes up to much but – 😀
Whatever it’s down to, I hope it lasts!