Today marks the start of round two in my current treatment plan: Tonight I need to take my second dose of Methotrexate (just as the nausea was subsiding) and then tomorrow afternoon I am off to the hospital for my second Orencia infusion.
The Methotrexate has surprised me a little; I wasn’t expecting to feel so sick on such a small dose and then there was the bone pain that came out of nowhere – I can see myself becoming part of the club that dreads that day of every week. I also can’t help thinking that I was better off without it but, then again, it is early days so I need to give things a chance to see how they pan out. If I see my consultant tomorrow I will mentioned the side effects I experienced – maybe there is something I can take to help with the nausea etc…
He never said whether he would be popping by to see me during my infusion tomorrow, but I haven’t spoken to him since the first one and I would think he’d be interested in seeing how things went. He’ll probably think I’m crazy when I tell him I felt a big improvement straight away – or maybe he’ll just be encouraged that this is the right drug for me. I feel excited in a way, because if I notice such a difference this time then it means it must be the Orencia helping. But what if it doesn’t? Am I going to feel disheartened?
I’m a bit concerned about the vein situation, since the drip struggled to go through my ‘best’ vein last time and I don’t have a whole lot of options – they have suffered from the monthly IV Ig and other IVs over the years. I’ll just have to drink lots of water in the morning and hope for a miracle.
Wish me luck