Considering we only had an afternoon slot at the hospital this time, it has been a loooong day. Arrived on the ward at about 12.15pm – just in time for lunch! – and then had my canula fitted and routine bloods / obs taken. I was expecting everything to be fine but my temperature was slightly high at 37.3 and my pulse rate 118, meaning I was given an infection risk score (which my high WBC probably only added to later).
These levels are pretty normal for me, but they still needed to get a doctor to give them a go ahead for the infusion. I can only guess that this is what took so long, but finally at 4.30pm I was hooked up and ready to go. The infusion got off to a shaky start, repeatedly claiming that the line was blocked, then just as we were about to try another vein it decided to behave and went through uninterrupted. I am definitely going to insist on a different vein next time though as we went for the previous one again, despite having this issue before.
Again, there were no drastic side effects from the infusion itself – just a bit of tingling at the base of my skull and then a five minute spell of feeling tipsy afterwards (again not unpleasant!). After half an hour observation, to make sure all was in order, I was free to go!
I swear that by the time we were on the road home I could feel a difference – revitalised and like a pressure had disappeared from my chest. I even joked that I would run home to beat the traffic! To me this is a very good sign, I have always said that the fatigue was possibly the hardest thing to live with, but obviously I need to see some improvement in the joints too, which I have to admit I didn’t get last time round.
But, I think this will just take longer to happen. My rheumy did say it can take months for the drug to reach its full effectiveness and so I consider myself lucky that I’ve had such a good start.
I’m hoping that from here, things can only get better 😀