I’ve written about the rollercoaster nature of living with Still’s Disease before and it seems like I’ve taken a seat on the ‘Big One’ once again. Last night I could barely move because I was in such pain; every joint was throbbing and painful, my muscles tender, chest sore with my heart racing and pounding in my ears, plus I was hot/clammy to touch. I tried to just sleep but I just hurt too much and ended up getting upset. This had all come completely out of the blue at a time when I was trying to stay optmistic. In the end, I had to take a mild sleeping tablet – sleepless nights are even more unbearable when you’re in too much pain to even toss and turn.
I woke up this morning still in quite a bit of pain, but at least I was able to get out of bed and walk about on my own. I hope this means that things will get a little bit better from here, or at least no worse; I was worried where they might be heading. My plan right now is to call my GP on Monday and explain to him the turn things have taken. He might take my next bloodtest a bit earlier to make sure things aren’t getting any worse and also to keep an eye on the folate levels, as I’m still convinced that the Methotrexate is playing a part in all this. Secondly, I think I need to reassess my pain killers because, as much as I despise relying on them, I need some relief right now.
We were supposed to be out celebrating a family birthday this evening but looks like I’ll have to give it a miss. *sigh* But look on the bright side, I get to spend some extra time with Jack Bauer… oh and my boyfriend of course 😉