I’ve got a busy few days ahead so not sure when I’ll be able to post updates.
Firstly, tomorrow I’m going for my fourth Orencia / Abatacept infusion in Manchester, which means another blood test and hopefully a visit from my rheumy. I’m interested to see what the results will show. I’m not really sure what to expect from them, as I’ve been up and down on a physical rollercoaster since the last ones four weeks ago – just before I ended up in hospital. If they’re better, then great but are they better because of the Orencia or because of the Prednisolone? If worse, well where does that leave me?
Results aside, I do feel better in some ways – like I’ve said before, I have more energy most of the time and I am up and about, able to do chores and things nearly every day. But I am also in pain every day, in numerous joints, especially my left shoulder, elbow, wrist and fingers. Most days I can barely move this arm; the elbow has been locked since May and is showing no signs of improvement, even when I increase the Prednisolone. I guess I’ve just become accustomed to the fact that it hurts and doesn’t work properly, although I know that’s not right.
Hopefully, I’ll get more answers and a plan of action tomorrow.
On Friday I’m having minor surgery on my hidrandenitis abscess/gland/tracts/scar tissue – all of which is hopefully going to be removed and then stitched back up. I’m sure he said it would be stitched back up; sometimes they leave the wound open to heal from the inside but I want those stitches… I’m still feeling a bit nervous about it all, I guess it’s unknown territory for me. What I have to remind myself of is all the misery it’s caused, having to put up with the damn thing for over a year now, and how sore and uncomfortable I’ve been every day because of it. Hopefully, this will be a means to an end of all that.
I’ll be glad when it’s all over and I can spend the weekend relaxing. We should actually be celebrating, because Friday marks four years with my wonderful boyfriend, but I guess that will have to be put on hold unless he has something up his sleeve…
For now, I’m just making the most of time at home and looking forward to film night with my friend – who is bringing Zoo Keeper and Mr Popper’s Penguins round later.
You’re never too old for Penguins..