It’s been a tough week joints-wise. Joints are flaring that haven’t flared for years – my knee for example hasn’t been swollen like this since I was 19, almost ten years ago, so that just shows that things aren’t improving on the Orencia. If anything, I feel worse.
Tomorrow I am at the hospital for my fifth infusion and will see my consultant. I’m not sure how long we have to persevere with the Orencia before we give up on it, but I’m thinking that tomorrow might start the ball rolling towards looking at some alternatives.
I’m looking forward to some short-term relief too, even if it does involve steroids in their various forms. I’m not going to let all this get in the way of enjoying my time in New York, but it would be nice not to even have to think about it.
I’ll let you know how I get on,