I can’t believe it’s already time for my fourth Tocilizumab infusion; December has just flown, but then I was asleep for most of it. I’ve been trying to think of things I need to mention,questions to ask etc, wondering if the blood test results will be good again and if they are enough evidence that it is helping the Still’s when I’m still struggling physically. Chances are, I won’t get to see my rheumy but maybe the nurses on the ward are supposed to be monitoring my progress and I should be more open with them? When they’ve asked ‘and how are you?’ in the past, I assumed they were just being polite, rather than prompting me to tell them how things really are. I didn’t want to bore them with the details if that wasn’t their intention, but I have to tell someone.
On showering this evening, I found three HS sinuses; they are tiny holes, like vampire bites but very deep and can easily get infected, causing swelling, abscess and further pain. No wonder I’ve been so uncomfortable.
I’m kinda freaked out that they keep appearing; I’d assumed it would be a one (or two) off and I’d be free but now it looks like something else I’m going to have to put up with. There is a theory that it is conneceted to having other autoimmune diseases. Lucky me.
Early morning tomorrow so early night for me too.