I have been updating the Articles page with recent stories featuring Still’s Disease worldwide; a lot of them are Tocilizumab / RoActemra based, but this isn’t a personal bias, it just happens to be in the news a lot right now and is fast becoming the new ‘wonder drug’.
Here are some of the other articles that stood out:
Canadian Woman Honoured For Career Helping Disabled Persons. – Traci Walters has spent her career helping disabled people through the Independant Living scheme; she herself, has lived with Still’s Disease since the age of 12 and I found one of her statements, that we should be promoting ‘disability pride’ quite touching.
FDA Accepts Application For New Pfizer Arthritis Drug – I’m posting this as I know myself and others are interested in any prospective treatments for Still’s Disease and this could be one. Tofacitinib is an ORAL biologic drug, inhibiting the Janus Kinase Enzyme (JAK). Although research surrounds treatment of RA, it is worth keeping an eye on.
For those of you taking Methotrexate, it may be useful to know that a Dr from Manchester feels that Ondansetron Quells Methotrexate Nausea
Norfolk’s Reverend Pat is Mother to the Untouchables – Read Pat’s story about her determination to make a difference to the lives of people in India, despite having to deal with numerous Still’s Disease flares throughout her life.
Finally, I also found an extract that discusses a series of books, whose central character is a man with Still’s Disease :
‘ In Cedilla (Faber), Adam Mars-Jones continued the odyssey of John Cromer, a young man confined to a wheelchair with Still’s disease. I’m already looking forward to the next instalment: I know of nothing else quite like this in current literary fiction’.
The first book is called Pilcrow and received rave reviews; I’m going to see if I can download them both on my Kindle and, if so, may review them myself shortly!
That’s all for now, I’m off to work on the Treatments section.