Just thought I’d post a little something about my first real day at home, which has been a mix of pleasure and frustrations. The first challenge that I faced was showering, which was much needed after two weeks of bed washes. Fortunately I received a lot of help from my boyfriend but, even though we made it as quick as possible, it was exhausting and I had to take some extra Oramorph afterwards. Plus, they never covered getting into the darn thing in ‘Crutch Technique’ and that tiny step causes more trouble than it’s worth. It needed to be done but I might stick to bed washes for a few more days now.
After pacing the rest of my care throughout the morning, I had a visit from a friend who brought a wheelchair to take me out to the local Supermarket so I could get some fresh air and a Valentine’s Day card for Tuesday. It felt like such a release after being stuck inside for so long and it was nice to have some company – what a star. I seem to have a bit more colour since too, so it obviously did me good to feel some sunshine on my skin!
Tomorrow is my first day ‘alone’, so we have had to come up with a plan of action to make sure I can manage for those hours my boyfriend is at work; at least, until the aftercare is put into place. Our plan basically involves me getting up with him first thing, to be washed, dressed, fed, medicated (!) etc and settled downstairs with plenty of drinks, snacks and my lunch at hand. We are using a little rucksack to keep all of my essentials in, that I can put on my back to move from room to room if needed, although I think I will be quite happy on the sofa for now. I’m sure we will learn things as we go along and hopefully it won’t be forever.
I’m finding it really hard to have to ask for so much help, even though my boyfriend tells me it is fine I feel like I’ve suddenly become a demanding nag!
I’m sure I’m not the only one praying that this is temporary! 😛