Today I woke up and noticed straight away that I felt less pain and stiffness in my joints; they were still very swollen but I was able to move much better. It would be great if I could put this down to the Infliximab infusion yesterday, to take it as a sign that it is going to work for me, but the chances are that these improvements are more likely to be as a result of the IV hydrocortisone I had beforehand. I can tell it was a substantial dose because I already have the telltale red cheeks I get with large doses of steroids. Any improvement in my physical condition is welcome right now though, as it will allow me to be more mobile and give me a chance to build up my strength through increasing the physio exercises. Maybe in time, we’ll even discover that it is the Infliximab, who knows. I just don’t want to get my hopes up like I did after my first Orencia infusion.
My Social Worker came round to visit today too, with some promising news. He is in the process of arranging for me to go to a heated therapy pool, with a carer, twice a week. This will be in addition to the hydrotherapy referral that I’m waiting for via physio. I really think these two things will help get my joints functioning normally again and build up some strength in my muscles, plus just being in the pool will feel nice and will get me out of the house with someone new. The idea is that I will get guidance from the Physio at Hydrotherapy – some exercises etc – and then be able to self-manage these longterm at the private pool. If two sessions + one of hydrotherapy a week is too much at first, we can change one of the private pool sessions to a trip out somewhere else – the library, shops, wildlife centre etc, to give me some time out of the house.
All in all, I feel much better with these things in place and this physical boost (if it lasts) should allow me to make the most of them and give me the best chance at recovery.
It’s made me realise that there is support out there and it is so important that we find it, because it isn’t always offered to us.