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Archive for March 20th, 2012

You’ll be pleased to know that I am pretty much caught up with my hospital adventures and so can focus on other blogging needs that have been neglected of late. The first of these is to trawl through all the Still’s Disease articles I’ve been sent since my stay, in order to update the Articles Section, as I know these are popular with many readers. I’ll start with February; happy reading:

New Hope For Children Suffering Rare Illness – Health Canada approves Actemra / Tocilizumab for the treatment of Systemic Juvenile Idiopathic Arthritis.

Jab That Ends The Agony of Rare Childhood Arthritis – New NHS treatment brings relief to nine out of ten young patients (Daily Mail).

New Drug to Treat Childhood Arthritis Approved – Four-year-old Evie Harnes was treated with Tocilizumab, which has allowed her to return to normal life (Includes video). You can also read about Evie’s new lease of life in this article.

NHS Given Go Ahead to Prescribe New Drug to Ease Pain of Rare Rheumatoid Arthritis – Another Tocilizumab Article From the Daily Mail.

NICE Recommends Earlier Use of RoActemra –  It is vital that patients have effective options available as soon as one treatment approach fails.

Better Care For Systemic Idiopathic Juvenile Arthritis – Standardizing Care Could Help Patients and Future Research.

Actemra (Tocilizumab) Shows Superiority Over Adalimumab – A similar article can be found here also.

Anakinra (Kineret) Turns Young Sportsman’s Life Around After Rare Arthritis Hits – Baseball star was told he’d never play sports again after being diagnosed with Still’s Disease.

Riding Along With Ellen Price – A Cyclist With Adult Onset Still’s Disease (AOSD) Shares Her Story.

These will all be added to the Articles Section too, to be accessed easily in the future. Tocilizumab / Actemra is featured heavily in Still’s news right now, so it is nice to see Kineret / Anakinra get a mention too. Especially as this drug is currently in the lead in our Top Biologic Treatment Poll right now!

I also wanted to post this video; it isn’t recent but it was posted on the Still’s Disease Cure Facebook Page the other day and I thought it would be interesting for those who haven’t seen it before. It isn’t often that Still’s Disease appears in the media! It is an interview with Jill Zarin, who stars in The Real Desperate Housewives of New York County, and whose son Jonathan suffers from Still’s Disease.

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