I recently found a book on chronic illness called ‘Sick and Tired of Feeling Sick and Tired‘, that I started years ago and never finished because I was quite well at the time. Picking it up now though, I’ve found that it has really struck a chord with how I am feeling at the moment and it has helped me to understand a few issues that have been a cause of frustration to me. Understanding is the first step in accepting and managing such issues.
The book is aimed at people with a range of Chronic Invisible Illnesses and although it doesn’t specifically mention Still’s Disease (surprised?!) or even RA, you would definitely recognise the majority of what is discussed, if not all of it. It gives some advice on how to combat the ‘bad’ thought patterns that make dealing with chronic illness even more of a challenge than it needs to be, with a range of simple techniques that you can practise. Not that it all boils down to thought patterns and so forth… but a lot of it really does make sense. I found myself folding the corners (tsk) of useful pages that I know I will want to return to again and again.
I’m also wondering if it’s worth encouraging the people close to me to read through it, to try and give them an idea of what goes on in our heads whilst dealing with all this. I often feel ‘judged’ unfairly, or that people don’t quite understand some of my actions / ways of dealing with my illness, so maybe this is one way to give them some insight into what it’s really like. Seeing some of my own thoughts and actions written down in a book was comforting – I found myself wanting to point at certain sections and shout -‘see it’s not just me!’.
I thought I’d give a heads up to people because it’s definitely worth a read, especially since it is easy to read. Just being able to recognise much of what is discussed in the book made me feel calmer and more at ease with my dis-ease.
I picked up a used copy from Amazon for around £3.00 (inc postage) so it won’t break the bank either.
Let me know what you think if you get hold of a copy!