I feel like I’m neglecting the blog and my other projects recently but I’m suffering from lack of motivation and I think probably some depression too; ironic since writing here has actually helped me deal with things in the past.
Since my last post things have probably got worse rather than better. On top of the Still’s flare symptoms, I have had this terrible pain in my left side / stomach, which gets worse on taking a deep breath, coughing, sneezing, hiccuping (I never noticed how many tiny hiccups we naturally have during an average day until now – ouch!). That’s been there for about three weeks now, getting gradually worse, until I could feel it in my back to the left side, then it changed again and I could feel it in my back on the right side.
I saw my GP a few times regarding this pain – his first suggestion was muscular pain, the second time he felt it was nerve related and so prescribed Amitriptyline. Each time he took a urine sample to make sure I didn’t have an infection or something going on. Finally, on Friday it got too much and I called my Rheumatologist to tell him I was getting concerned and he arranged for me to be seen in the Medical Admissions Unit. To cut a long story short, we had a long wait to eventually be told it was a Kidney infection after my second urine sample (the first being clear?) showed blood and protein and I was swiftly sent home with some antibiotics. They wouldn’t perform any abdominal scans since I’d had some back in February, so to me this was just an educated guess.
I wasn’t completely confident in this diagnosis, as I know that my Kidneys can be involved with Still’s flares too. I have had blood and protein show up in urine tests because of high levels of inflammation and cell damage; I used to have the dipsticks and had to keep a diary at one point. However, I was eager to get rid of the pain so I took the meds as prescribed. A couple of days into the antibiotics I started to vomit violently and it was always a thick, sludgy green. Considering that throughout all this I was sore and stiff all over, with temps coming and going, it all felt too much and yesterday I just didn’t know what to do with myself. In the end, the only way I could get comfortable enough to just lie in bed was to keep taking my Oramorph hourly (when I could finally stomach it), something I haven’t had to do for months.
And that’s where I’m up to today. I haven’t taken the antibiotics again in case they caused the vomiting, but have left a message with the GP receptionists to see if I can get a different type that I’ve tried before. I’m keeping up with the morphine and have increased my Presnisolone further – I am that desperate for some relief. My Rheumatologist is away until Monday and I’m starting to feel that he is the only person to listen and to see the picture as a whole rather than jumping to conclusions. Not that I think it is easy for doctors when faced with a complicated condition like Still’s Disease and all it brings with it, I just wish they’d give a little more time and consideration. But hey, that’s a different story and maybe a different blog post.
For once I’m glad the week is passing quickly. I just want some answers and some relief.
Hope to resume normal blogging activity at some point in the future,
Until then, take care